Dysphagia

[Ebo]

I’ve recently been diagnosed with this and waiting to see a specialist. There’s no real cure just management / therapy. The worse part of the scale is 5 where you cannot eat or drink in the normal manner and you are tube fed. I’d say I’m at stage 1 with 2 being a bad day where I cannot swallow food correctly and it gets stuck in my throat. This has happened as soon as I came off the tail end of Covid a few weeks back. I ruptured a chest muscle just from coughing food up. It’s a really nasty thing especially for someone like me who loves their food. I’ve a list of what I can eat though and drinking is no problem but chicken and bread seem to be the worst possible things and I avoid.

Has anyone else experienced this or know of anyone who has?

 

[sainthelens]

Thoughts are with you pal, keep battling.

 

[Ebo]

Cheers mate. I’m mostly ok. Just have to be very careful / choosy what i eat.

 

[Best_loser]

So many things they don't understand , sounds like one of those , what is known about the human body has advanced a lot but it's still just scratching the surface , hope you can adjust ok to any problems it might cause

 

[Professor]

So many things they don't understand , sounds like one of those , what is known about the human body has advanced a lot but it's still just scratching the surface , hope you can adjust ok to any problems it might cause

Difficult disease to live with-just have to live as best you can around it. When my wife was a community dietitian, dealing with dysphagia was a common part of her work.

My best to you Ebo

 

[Ebo]

So many things they don't understand , sounds like one of those , what is known about the human body has advanced a lot but it's still just scratching the surface , hope you can adjust ok to any problems it might cause

Difficult disease to live with-just have to live as best you can around it. When my wife was a community dietitian, dealing with dysphagia was a common part of her work.

My best to you Ebo

It is baffling what has caused it as I don't take drugs or smoke and I barely drink alcohol. They say 22% of people over 50 get it. Only flared up after getting Covid. I am eating better and managing to supplement what I eat with meal replacements instead of snacking (use complan) seems to be helping.

 

[Darran]

Difficult disease to live with-just have to live as best you can around it. When my wife was a community dietitian, dealing with dysphagia was a common part of her work.

My best to you Ebo

It is baffling what has caused it as I don't take drugs or smoke and I barely drink alcohol. They say 22% of people over 50 get it. Only flared up after getting Covid. I am eating better and managing to supplement what I eat with meal replacements instead of snacking (use complan) seems to be helping.

Be well Johnny.

Is it caused by talking shit?

 

[Ebo]

It is baffling what has caused it as I don't take drugs or smoke and I barely drink alcohol. They say 22% of people over 50 get it. Only flared up after getting Covid. I am eating better and managing to supplement what I eat with meal replacements instead of snacking (use complan) seems to be helping.

Be well Johnny.

Is it caused by talking shit?

old age mun

 

[dickythorpe]

Ask your doctor for fortijuice and fortisip on prescription.
They are ready to drink bottles of high protein/energy/nutrients.

Thoughts are with you.

 

[dickythorpe]

https://www.nutricia.co.uk/patients-carers.html

 

[Costello]

I’ve recently been diagnosed with this and waiting to see a specialist. There’s no real cure just management / therapy. The worse part of the scale is 5 where you cannot eat or drink in the normal manner and you are tube fed. I’d say I’m at stage 1 with 2 being a bad day where I cannot swallow food correctly and it gets stuck in my throat. This has happened as soon as I came off the tail end of Covid a few weeks back. I ruptured a chest muscle just from coughing food up. It’s a really nasty thing especially for someone like me who loves their food. I’ve a list of what I can eat though and drinking is no problem but chicken and bread seem to be the worst possible things and I avoid.

Has anyone else experienced this or know of anyone who has?

No I haven't but best wishes with it

 

[DJack]

I really do feel for you mate. Take care.

 

[Professor]

I’ve recently been diagnosed with this and waiting to see a specialist. There’s no real cure just management / therapy. The worse part of the scale is 5 where you cannot eat or drink in the normal manner and you are tube fed. I’d say I’m at stage 1 with 2 being a bad day where I cannot swallow food correctly and it gets stuck in my throat. This has happened as soon as I came off the tail end of Covid a few weeks back. I ruptured a chest muscle just from coughing food up. It’s a really nasty thing especially for someone like me who loves their food. I’ve a list of what I can eat though and drinking is no problem but chicken and bread seem to be the worst possible things and I avoid.

Has anyone else experienced this or know of anyone who has?

Thinking about it- ask your GP to be referred to the Community Dietetics team. They should be able to give the best advice on supplements and management (such as softer diets).

 

[Ebo]

Well I saw the specialist yesterday and they took bloods and urine and it appears I have acute pancreatitis. Which explains the nausea and sickness as my pancreas is inflamed. The initial possible dysphagia diagnoses from my GP was not a million miles away as the symptoms of not being able to swallow / keep food down is similar.

They ruled out gall stones and cancer for now (the samples will give them an indication) as I have no fever, problems passing water and stools are clear. What I was getting was a dull ache in lower abdomen which would spread to my back. I drank ginger water to alleviate that which the specialist said was a smart thing to do as painkillers would probably make it worse.

I have lost nearly 5 stone since April due to not being able to eat much and relying on soft foods and meal replacement suppliments. I was touching 17.5 stone and now just over 13. i should be 13.5 for my heght.

So I am on a course of anti-inflammatories and have to eat small but often. No food later that 8pm just liquids and no alcohol (I am ok with that as rarely drink these days). If I get severe pain or symptoms persist then i will need to go back. Worst case scenario is that they whip my gall bladder out and sell it on the black market.

 

[dickythorpe]

Ebo, I feel for you mate
Is it "Rocks" ginger you are drinking?
If so it does help I can tell you from bitter experience.